Archive | August 2009

A few photos of my mom and aunt…

My aunt was here to visit from Washington.  She is my mom’s sister and is 11 years older then my mom.  Those of you who read my blog know that I lost my mom almost three years ago now.  Every day I think of her, everyday I miss her.  Everyday there are things in my life that I have no idea how to solve and she was my beacon.  No, by proxy and probably without her consent, my aunt has become that for me in so many ways.  Probably in ways that she doesn’t even know.  When I have no one to talk to about kids or marraige because life has become like an avanlanche without a stopping place I know I can text or email my aunt and she will make me smile, help me remember the truth about my kids and how amazing they are and bring my mind back around to what it is that I need to do for me…regardless of what others say or think.  She is that one person for me! 

When my mom was about 41 years old my dad  had a proffessional portrait pained of her that he has hanging to this day in his living room.  When i saw my aunt for the first time in a couple of years I was blown over by how much she looks like my mom.  It was like being with mom all over again.  So, I took some pictures.  Now some say creepy…I say it is a legacy of strong beautiful women who God sent here to help me get through my own version of insanity.  Because without these two women I  would be lost.  So, here’s to Auntie Lois and Mom.  I love you both.

Sick sick sick…..

I have been sick…again.  I have shingles again, and it just isn’t fun.  And, so I’m having a little pity party for myself…I’m entitled to that right?  There are times when I really sit and wonder what it is that I am supposed to do with this life that I have.  I mean..any little stress or over exertion on my part and it seems my body, the lupus, rebels and that’s the end of that.  And, deep down I am afraid.  I’m afraid of getting sicker, afraid of dying and leaving my kids a lone, afraid of becoming such a burden that no one in their right mind would want to take care of me for that long haul.  And there are the fears that all the medications are just going to rip my insides to shreds anyways!  How does one reconcile oneself to that being the way life is going to be…forever? 

I do have a “bucket” list so to speak…things that I would love to do before I go…before my time on this earth is through.  For instance I would love to go to Ireland…I would love to wander around all the little villages and countryside.  But with that dream comes the fear of getting sick overseas in another country….a double edged sword!  I would love to write a novel…I do have one started…but what if it became popular and famous?  How would I cope with a book tour?  Book signings?  Would my body survive that kind of abuse?  Then there are the more realistic things like seeing my kids have babies…I want so much to be  around for that.  i can’t wait for that! i want to see my kids get married, to watch their relationships develope and flourish.  I want to see them fall in love and know that joy that brings to your life.  I want to see where they go with their careers.  They have big dreams and I have no doubt they will achieve whatever they set their minds to.  I want to be here for all that!  I love my kids.  they are my heart and soul..they are that small part of me that continues on even after I am gone.  I want them to know how much they mean to me!

When I am sick, like i am now, I think of all these things.  I got to see my son play in church again last sunday.  I am so proud of him and grateful that he is getting the chance to play.  He loves it so much.  I started feeling sick the day before, saw the shingles beginning to form.  Then sunday I felt strange.  i wasn’t walking straight, my words were slurring.  things just weren’t right.  I went and asked my brother for prayer (he is the pastor at our church) and he laid hands on me and prayed.  Every day I hope that things will get better but it  seems as i get older it is getting worse and that I am letting more and more people down because I just don’t have the energy to fight anymore.  I don’t have energy to fight this disease or to fight the drama that is going on in our life either.  And it is unfair to everyone around me. 

I beg God to help me.  To make things better just for a little while.  There  must be some sort of lesson that I am supposed to be learning through all of this.  But as of yet, i have no clue what it is.  Hopefully it will become clear soon.  Until then I will just keep praying and hoping that things…all things..get better.  Because honestly it can’t get much worse!

life is fragile

Dad had a new defibrilator put in today.  My dad has always been the kind of man that, no matter what the illness or surgery, he didn’t use pain meds afterwards.  He has always been out of bed walking by the evening of the surgery come hell or high water.  He has survived 19 heart attackes, stents, ablations, angioplasties, knee surgery, blood clots and the list goes on.  This was his fourth defib install and today my dad was in pain.  I think this is the first time I have seen him in real pain. It was hard to see him like that…he has always been the strong one, the one who could handle the pain and would do his best to help us handle our pain.  Today, I saw how truly old my dad has become…which in turn made me miss my mom.  Thankfully he made it through the operation  and will go home tomorrow.  Growing old much be hard!!! I’m not sure I’m looking forward to all of it!