Dad has gone to be with Jesus!

lori better hand

Dad and my hand before transport to hospice!

It’s been a long and traumatic couple of weeks.  I never in a million years believed that my dad, my strong, fighter of a dad, would go to be with Jesus the way he did.  I always thought that his heart would probably stop in the middle of the night and the suffering and fighting he has been doing all these years would just be over.  But, in true dad form, he fought till the bitter end.

A couple of weeks ago dad was hospitalized with a bowel obstruction.  He was in such intense pain and so sick.  He had a tube down his nose into his stomach to drain all the poisen that was building up making him ill.  So, the doctor went in and repaired the obstruction and really that’s when the trouble began.  He was sent home from the hospital, probably much too early since he couldn’t urinate, but home he went.  Two days later he ended up back in the hospital, his bladder twice as full as a normal bladder should be, filling up with fluid around his lungs, and dilerious from all the retention of that fluid.  Once a cath was inserted and his bladder began to empty his extremem discomfort began to ease.  He was told his prostate was enlarged and that his congestive heart failure and COPD  was getting worse. 

Then, last wednesday dad got to a point where breathing bacame almost impossible for him. I won’t forget the sight of him leaning over the side of the hospital bed, gasping for breath, begging for air, for a fan to be blown at him, for anything to make him more comfortable.  He was finally moved to ICU and put on a machine called a Bi pap machine.  It is the last step before a ventilator.  It basically forces air into his lungs with out the invasive nature of a vent.  Gradually his breathing eased, he was recieving morphine, lasiks, antibitotics and had a larger cath since blood had begun spilling out of his bladder.

No one seemed to know where the blood was coming from.  He hadn’t been restarted on blood thiners after his surgery so clots were forming from the blood in the bladder, and having to be irrigated from his bladder.  It was an excruciatingly painful procedure for him each time they irrigated.  He would look up with these child like eyes that seemed to beg “please make it stop”.  But, dad was not ready to be done fighting.  Each time the doctors gave us an indication that “this was the end” he would rally.  We would leave his room as they were performing yet another procedure, thinking that he would be on that downward slope, only to go back to his room to find him sitting up, eating with gusto and being his ornary self again.  And, each and every time us kids would stand in wonder thinking how amazing God’s grace is and what an extraordinary man our father is.

Finally, however, his blood pressure started to plummet, and his kidneys began to shut down.  there weren’t a lot of options left.  We had a talk with hospice and got our options.  Dad was talked to, and he decided he wanted to take it one day at a time and continue to fight.  That was tuesday.  Wednesday morning his kidney levels had gotten to the “we’ve fought as hard as we can and we can’t do it anymore” point.  The congestive heart failure had depleted all dad’s strength, and fighting for every breath was taking a toll beyond what he could handle anymore.   So, that morning dad told the doctors, with my brother and I by his side, to turn off his difibrilator and move him to a hospice facility.  All he wanted was to be knocked out to the point where he no longer knew what was going on.  He was tired of gasping for air, all his fight was gone.  At 4 PM on Wednesday he was transported to the hospice facility.

It took a while for them to get his meds under control and to the point where he no longer was struggling for breath. And in true dad form he didn’t stop giving orders and telling everyone what to do.  At one point, while having an extraordinarily hard time breathing, he asked for a peice of paper and a pain…motioned is actually what he did since he really didn’t  have breath to get out many words.  We all sat there with baited breath expecting some profound last words to come from this brilliant man.  He took the pen in his shaking hand and started to try to write.  What he wrote well, it was not quite as profound as we expected.  He said, “I’m ready to go. Bring on the morphine”.  Then he motioned and gasping for each breath said “Two of you sit me up, two of you get me the drugs.  Bring on the juice.  knock me out.”  And, like when mom died, our family shared laughter along with the impending death of our dad.

  We got our chance to say our goodbyes.  I will never forget walking to his bedside, leaning into his ear and whispering “I love you dad. He quietly whispered “I love you too.  I will say hi to momma for you.”  I immediately had a picture in my mind of mom and dad reuinting in heaven, and my grandma coming up to tell my dad that before the celebration could begin she had a few little chores she needed done around the Mansion that was prepared especially for him”.  And then grandpa would come up to him, his full 6 foot 3 stature walking like regal royalty, extend his hand to dad, and pull dad too him, grasp him and say “welcome to heaven Don.  Jesus has been getting everything ready and we have been anxiously waiting for you to come for our amazing family reunion feast”.  My grandpa was my dad’s hero.  I can imagine the light in my dad’s eyes when he was again reunited with all those he loved.  His face would have gone from looking tortured, childlike, begging for relief from his suffering, to overwhelming joy and calm.  He told us all in that moment that he knew where he was going and he was ready to go.

Dad’s earthly journey came to an end peacefully at 3 AM on thursday morning.  He just calmly took his last breath and surrendered himself to the warmth and comfort of the arms of Jesus.

My dad was a man unlike any other.  He fought for each and every day of his life.  19 heartattacks, 4 difibrilator/pace maker combo’s, many stents inserted into his heart, multiple surgeries yet he never ever gave up almost to the very end.  I will never know if he was still trying to hold on for us kids, for the grandkids and great grandkids, or if he felt he still had more living he needed to do.  But whatever it was, he fought, with gusto, for each day, each breath, for every ounce of life he lived.  He died like he lived…with strength, with a strong will and spirit and surrounded by of of us who loved him ferociously and whom he loved back with just as much passion and ferocity!

If you are someone who knew my dad and has any memories to share with us about him that could be added into the funeral please email them to me at lwayswright@aol.com.  The more the better!!!

I will miss you dad!  I know you are with Jesus, with mom and celebrating a life that will never be forgotten!dad at hospital 2

It will be over soon….I hope!

This weekend was the end of the line for us with my stepson.  He has pulled my other stepson into his criminal mess, screwed up this family almost beyond repair and today is the end.  I have a call into his PO….she will know it all.  He skipped school once again today.  He didn’t come home yesterday from wherever it was that he was.  So, we locked the garage down, and locked all the doors so if and when he decided to come  home he couldn’t get it.  Well, he did get home, probably around 2AM and was let in (although he denies it) by his younger brother who is becoming more screwed up by the day.  He is now laying in bed, sound asleep, totally unaware that I called his PO and left her a message that I  could no longer handle him  living in this house, and that he has broken his probation too many times to count.  And the amount of disrespect and just plain meanness astound me to no end!  It has hurt my marriage, my relationship with my own kids, their relationship with my husband and the list goes on.

If they come to get him I’m sure it will be messy, loud, and dramatic…nothing with this boy is less then dramatic.  But when it is done everyone will breathe easier.  I am breaking out with, what I can only think, is shingles again.  Too much stress.  I go to the doctor tomorrow.  But for now, I am just waiting on the PO and hoping for a brighter tomorrow.

It was homecoming this weekend for my son.  So, here are a couple pictures of him and his date and his best friend.  They are such great kids and I am so proud of them for staying clean and not wavering from their beliefs.homecoming 2009 cotton candy 019

Lupus can be predictable part II

It would seem that in the whole vast realm that is my blog (Ha ha) “lupus can be predictable” seems to be the most read post.  I guess that’s a good thing because it means that more people are trying to get a handle on this whole lupus disease.  It’s a little perplexing to me that more people don’t know about lupus and the affects that it has on a family, on a person, on life in general.  Cancer is such a focus…and heart disease…high blood pressure… diabetes.  But lupus?? Hmm…but the reality is that all those former mentioned illnesses are often associated with lupus.  A lupus warrior ( I call them warriors because every day they go about their lives looking normal, acting normal, not letting on they are seriously hurting) can struggle everyday with cancer ( I have had squamous cell on my shoulder) heart disease, high blood pressure ( I am on three blood pressure meds and mine still averages 151/101) not to mention lung infections, arthritus, shingles, irritable bowel syndrome, blood clotting disorders, migraines, and a host of other ailments that just happen to accompany lupus. 

A lupus warrior gets used to reading their own bodies to feel when a flare is coming on.  Oftentimes we are very good at acting, we can pretend that everything is okay when it really isn’t.  But we ourselves KNOW when something isn’t right.  And, my family is getting pretty good at spotting when things are not quite right with me.  But, even then I try my hardest to throw them off the scent and pretend like things are good. 

For instance, I have been battling a migraine for about 2 days now.  But I still ran my kids around from here to there, I am going to lunch with dad today, I am trying my hardest to clean this messy house of mine, and keep moving.  Because in reality, there is only so long that someone can stay in bed, laying around, before they feel totally worthless and the depression that exists in the background of your mind everyday, moves to the forefront and destroys your day, week, month whatever.  So, I plug on.  But, tomorrow, when I have exhausted myself with trying to be a “good mom, good daughter, good wife” I will be in bed hardly able to move wishing I had taken better care of myself.  Hence, the predictable part of lupus. 

So, if you know someone with lupus or you yourself have it, know that you are not alone in your struggle, and fight.  Know that there are many many of us out here who are dealing this on a daily basis yet feeling hopelessly alone.  And don’t forget to at least some of the time take care of you!!!!!!  And, keep fighting!

Ugh!

I have been feeling gross all day today.  My stomach is churning and nothing that I eat stays inside of me for very long.  I’m not sure if I have a flu bug, or if it is just stress from the goings on of our home at this time.  I want so badly to write something positive and uplifting and life affirming here today.  I want to feel those things…faith grace mercy, joy, happiness.  But these days all I seem to feel is defeated and tired.  It would appear that life is giving me lemons right now and I am not sure how to make the lemonade!  Has anyone ever had those kinds of time in life? 

I try to really look for the good in every situation.  I stand by the fact that God’s grace is sufficient for me, but I gotta say that this is a time, in my life, which hasn’t really happened very often, that I am doubting..doubting myself, my life, my marriage, my family…I’m doubting god.  This is one of those times, like when I first was diagnosed with Lupus, when I don’t see any end in sight or at least  not very soon.  And, it’s not just the crud going on with my stepson, it is a  whole lot of strange things goin on in my life.  Maybe I am going through menopausal mid life crisis.  I’m telling you those hot flashes are way worse then my mom said, and she said they were pretty bad! 

We had a really fun weekend last weekend.  My stepson had basically run away on friday night and wasn’t heard from all weekend…so, we went to a movie and took my kids, yes MY KIDS to this great resturant over by the new cardinals arena.  We had a great time laughing and being together…like old times.  My other step son was with us and he gets a long with my kids great!  There was no stress going on about the other step son, no mention of him, no chatter about him nothing.  And…NO TEXTS or PHONE CALLS from my husbands’ ex about him (which are dozens on a typical day).  We were just us again, back to normal.  Then Sunday came and once again all hell broke loose!  The step son was brought by his mom back to our house, after having been on the run all weekend, and was given no consequences for that, no punishment it was back to life as normal…with him calling all the shots.  But for that one moment in time it was good.  I have tried and tried to tell my husband “do you see what he is doing to all of us”  but…to no avail.  anyway, I thought I would post some photos of the fun we had for that split second in time!

Huge cotton candy desert!

 

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