today I received an email from the Lupus foundation about an ad campaign that I am going to be involved in. They have asked if I would keep a journal for two weeks about what it is like living on a daily basis with Lupus. As some of you know, who have read this blog before, I tend to write little snippets here and there about life with Lupus and the way it affects my life, my families life and how we live. I try really hard not to get to depressing or morbid, or morose about any of it. I pride myself on being a fighter of the disease and not a person who gives in to it and it’s evil ways (sounds like it’s human huh?)
So, for the next two weeks, just as a warning, I may write a bit more then usual about life with Lupus, just so that my journal for the Lupus foundation and my blog can have one voice. It is so important to me that the world begins to understand this illness and the toll it takes on so many wonderful people. There are many illnesses out there….horrible, dibilitating illnesses, sickness that takes lives, parents away from children and vice versa. Those diseases, those illnesses get a lot of press…from heart disease to breast cancer, to prostate cancer, HIV and aids and the list goes on. Lupus, I believe, is the silent killer. It creeps in, seemingly unnoticed, hard to detect, hard to treat, and very often hard to live with. But not many people know about it. Most of us with Lupus don’t lose all our hair from chemo (although chemo is a treatment sometimes used to treat Lupus) we oftentimes look quite healthy. But inside…we are falling apart. That’s the really sad and hard part, the part that people can’t see.
So, for two weeks, my life will be here, for all to read and see. The ups and downs, the good days and bad. I hope there is learning and growing for all of us who are involved in this adventure…yes I said adventure. Learn with me, grow with me, discover Lupus with me…and let’s discover a cure!