About Me and my web blog

My grandson at christmas time!My granddaughter and IHi.  My name is Lori.  I’m really no one exciting or famous or exotic.  I’m just a wife, mom and a sometimes writer.  I love to share what I am feeling and thinking through words of poetry or in stories or just by jotting a few notes down.  I have lupus.  Again…nothing exotic or special.  Just a disease that I am daily learning to live with and survive through.  It’s not picnic and it has caused myself and my family to go through a lot of changes and growing.  If I can touch just one person with a chronic disease and let them know that they are not alone in  the world then I guess my mark has been left.  So, please, read, enjoy, ponder and comment if you feel led to do so.  And, keep smiling cuz nothing is worth losing a moments sleep over….not even lupus.

58 thoughts on “About Me and my web blog

  1. Permanent Ink says:

    I appreciate the visit…I read that you are a wife, mom and sometimes writer..How strange..ME TOO! –I don’t have a very good support system, when it comes to sharing, discussing the Lupus factor that has just ‘appeared’ in my life. All the best to you …I will visit soon!~

  2. Justin Solitrin says:

    Hello there, received your response to one of my posts… I thank you kindly for your interest. I was, however, unsure as to what list you were referring to… or whether it was referring to myself or to David. I would be more than happy to come up with a small side project that we may share in, or perhaps we can share one of those cups of coffee- two locations meeting at the same time.

    Again, a kind thanks

  3. javaqueen14 says:

    Amazing outlook! I’m am so sorry that you are battling Lupus. But that last line; “And, keep smiling cuz nothing is worth losing a moments sleep over….not even lupus.”- Is just the wake up call I needed tonight. I wish only good things for you and your family, thank you.

  4. sottovoco says:

    Thank you for your post on my blog. I love your photos. They are really inspired. I feel hope when I look at them. Thank you too, for sharing your story. It helps us all to know someone else has struggles, too. Keep up the good work.

  5. ponderbox says:

    You seem exciting to me. I sure do love to read your blogs. By the way, thank you for your comments. I especially thank you for the one on my page ‘The Ever-Exciting Me’. It’s nice to know someone believes in me, even though I’m a complete stranger. It gives me some faith in human kind. Well, much thanks again and I wish you many more interesting blogs!


  6. unabashedgirlygirl says:

    Hi, Lori! Thank you for stopping by and reading my humble little writtings! I look forward to reading yours! 🙂

  7. lspinno says:

    Thank you for visiting me! It was a great reinforcement. I admire your outlook while dealing with Lupus. I look forward to reading more about your life…

  8. kevin says:

    well that does it! I too will begin a lupus blog. Yes I have the damned Lupus too and it’s killing me, I’m sure! But you have given me a spur, a jolt if you will. After 20+ years with the demon I will gratefully admit and submit. So when I get it going (the blog) I wil contact you. btw I have a secondary chronic condition – I am a man!

  9. lwayswright says:

    Well welcome to the wonderland I like to call Lupusishyville. And yes your secondary condition is quite extraordinary…I will look forward to reading your blogs about your life! Thanks for the comment!

  10. Young1 says:

    You are an absolute legend to have that attitude and not get down but things – lately i have been trying to keep my spirits up over the smallest things and reading your blog has made me put things into perspective a lot more i really appreciate the mental kick up the backside and i wish you well in everything you do.
    I will definitely be back to read more!
    Take care

  11. jadeworld says:

    Thanks for visiting my blog and responding to it. I think your blog is very interesting and I will be reading more of it!

  12. kelliegirl3 says:

    Thanks for the comment on my 100th post!! It is exciting for me. Just wondering what “Oh little pig in Bethlehem” means?!? 🙂

  13. N.O.B. says:

    Hey Lori,

    Thanks for the reply. Yes, we’ll make that happen. We’ll need to submit something to post on “the Exploited” from you. Ideally this should be something exceptionally awesome. It can be a video, picture, audio…anything we can link to… funny, weird, unique, profound whatever.

    Do you want to use your blog as the link for “the elite” and what name/handle would you like to show on the member list with it? We can even put a pic with it if you wish. Let us know.

    Thanks, Josh N.O.B.

  14. planetross says:

    If you want to join in the “6 word memoir” but haven’t figured out how to tag/link/blah blah blah (I had to ask a friend how to do it); just post your entry on your site and send a note to the original poster: http://bookbabie.wordpress.com/

    or leave a comment on his “6 word memoir” comment page: http://bookbabie.wordpress.com/2008/02/18/6-word-memior-meme/

    He will probably link to you, so you don’t have to do anything

    I hope this helps.

  15. Shiny Things says:

    Thank you for stopping by my blog and leaving such a wonderful comment! I am always delighted and surprised when someone outside of the “regular” readers leaves a comment 🙂

    I’ve just read a bit of your blog, but I love when real people share the way life really moves them. Finding a way to find the silver linings in any situation inspires me and I found it here! Keep writing, I plan on coming back often!!

  16. screamofcontinuousness says:

    Hi Lori,

    thanks for stopping by my blog and leaving a comment. I’ll be reading yours in just a bit as I settle down with my coffee. Just curious, how did you find me?


  17. Sahar says:

    Dear Lori,

    Hey, my name is Sahar, I am with http://www.wearelupus.org. I read your weblog and I find your positivity very admirable. Your blogs are interesting and rejuvenating especially for individuals that are either afflicted by Lupus themselves or have family members afflicted by it. There are a prolific group of members on the website that I know would be keen to read your blogs. I think that wearelupus.org will be of great interest and use to you as you will have the opportunity to interact with people that are in similar situations as yourself. Amongst us, there are dedicated users that will avidly read your blogs and it would be great if you could come and leave your comments/thoughts. Below I have given the guest access information. Look forward to hearing from you.
    website: http://www.wearelupus.org

    username: guest1

    password: weare1

    Many thanks,


  18. hautepocket says:

    thanks for stopping by my blog, i hope to see you more in the future. i was looking through some of your flicker photos, and wow! you have some amazing photos! i look forward to reading through your blog archives-and yes, you are interesting. we all are in our own ways, i suppose. take care 🙂

  19. Starr says:

    Hello, Lori:

    My, oh my, you are an enchanting person. Maybe, I can take some lessons from you on strength when faced with adversity. I am struggling with a cheating spouse. He doesn’t know I am on to him. I am trying to uncover much in the way of why? And if I am merely manifesting my inward insecurity. My blog will help me to heal, I know it will. I’d like to build on your strength, that which I lack so desperately.


  20. fairyangel28 says:


    I know it’s been awhile, but thank you for stopping by and commenting on my blog. I’ve been learning so much about everything, and what you said about writing is totally true. You gave me something to think about- it took me awhile to get to the answer, though:)

    Thank you!


  21. Norm says:

    It’s no wonder you have so many comments, you do get around!

    It’s no wonder you receive such compassion from others . . . you seem to be full of openess and integrity yourself.

    Thanks for stopping by my blog. I’ll visit you as well. May you and yours have a very Merry Christmas!

  22. marielsgarden says:

    Hello Lori,

    Thanks for sharing your journey with us. If it’s worth anything too, we just want you to know that you are never alone.

    Keep smiling! Blessing to you and the family.



  23. Troy says:

    Hi Lori! It’s your old friend (and senior year prom date) Troy (nee Nelson) Stack-Nelson from MA days. I got this link from the Arrow and just had to write to say hello. We live in Stillwater, MN now, having just returned from 4 years in Princeton, NJ where my wife Judy is working on a Ph D from Princeton Theological Seminary.
    I’m sorry to hear you have lupus, but it sounds like you’re handling it with your usual pluck, vim, and vigor! Oddly enough, I decided to donate some clothing to the Lupus Foundation last week. Interesting…
    i hope this finds you well. My email is tsn57@hotmail.com
    Peace & Joy this Christmas to you and yours.

  24. Pauline says:

    Hi Lori! Thanks for stopping by my blog. I always love the idea of New Year’s Resolutions, but sometimes feel it should be applied to our lives every single day. Each day is a new day to begin anew.

  25. Kitty says:

    Hi, thanks for the birthday wishes on my blog.

    So glad to know you are back on the insured rolls. A real shame, you know, everyone has a right to health care.
    Wishing you the best, stay healthy.

  26. Carol Ann says:

    Hey, thanks for the comment on my blog. I browsed around your blog and was inspired. Thanks for your encouraging outlook on life and may you and your family find joy in unexpected moments this new year! Happy 2009. 🙂

  27. ggw_bach says:

    hey, nice looking blog!

    just a question: do you know you can change your default tagline –

    the one that says “just another wordpress.com blog”

    maybe you just like that tagline 🙂 but if you go into your options and fish around, you can set that to something more personal, that says something about your blog.

    just a thought 🙂

    looks like you’ve aquired quite a readership here. Probably don’t need advice from me

    take care

  28. ardent1 says:

    I have been following your Blog and would like to invite you to share on Ardent Cerebrations: Musings Lupus Survivors! Positive reponse to my Blogspots, my MySpace and the Lupus Survivor Stories Blidget inspired me to create a new online community to bring us all together. Individual survivors may express their “passionate thoughts” on blogs. Lupus groups may join to promote their cause. Everyone may collaborate and contribute toward a hub of information to be shared on this network. Please accept this invitation to be a beta testers in the final phase of development before going public.

    Hope you will accept my invitation,

    Angie Phillips
    ACMLS Founder

    Ardent Cerebrations: Musings of a Lupus Survivor!

    Ardent Cerebrations: Musings Lupus Survivors!


  29. sstorm0730 says:

    I have MS…as you know, Lupus, MS and RA are all somewhat related. Yet they are so different, too! I applaud you for living and not giving up. Apparently, I have had MS since I was 15 or so, but only found out when I was 45. I choose to ignore it when I can, laugh at myself a lot and live life with a positive attitude. Applaud yourself!!! You deserve it!! 🙂

  30. delaflor says:

    “…in daily speech, where we don’t stop to consider every word, we all use phrases like ‘the ordinary world,’ ‘ordinary life,’ ‘the ordinary course of events’…But in the language of poetry, where every word is weighed, nothing is usual or normal. Not a single stone and not a single cloud above it. Not a single day and not a single night after it. And above all, not a single existence, not anyone’s existence in this world.”

    -Wislawa Szymborska, Nobel Lecture 1996

  31. Gary Spear says:

    Hey Lori –

    Thanks for visiting my blog! I’m glad you did because your visit led me over here to visit your blog. I’m enjoying reading your posts. I’ve just read a few but intend to read several more! Keep up the good thoughts!

  32. loveismyalterego says:

    Thanks for the post on my blog. I forgot to mention that in my comment! I appreciate the insight! Maybe I need to search for a good married friend to offer similar insight. LOL! Thanks again.

    I’ll be back to read more of your blog.

  33. secretlifeofjane says:

    Thank you for visiting my blog. I’d appreciate more of your insight as a betrayed spouse. Feel free to drop by anytime.

  34. theheadstrongme says:

    Hi Lori!

    A fellow Lupus patient, I’ve bookmarked and been following your blog for a few months now. I have a quick question for you.

    I’ve started a project I’ve dubbed “The Lupie Log” on my own blog (address below). Through the project I hope to offer the insights of willing parties – individuals from all walks and in all stages of life who are living headstrong with autoimmune disease – to support and inform both fellow AI disease sufferers and those who are interested in understanding rheumatologic disease. Once a month, beginning in January 2011, I hope to post to my blog their stories and pearls of wisdom – in the form of answers to prompts I post each month, or of submitted personal stories / journals.

    I enjoy reading your posts and sharing your triumphs and struggles, and am so hoping that you would consider submitting to this project and/or make suggestions about how to improve my idea! Please consider visiting the blog at the address below, and clicking on “The Lupie Log” tab to learn more about the project. It is such a privilege to connect, and to learn from others who deal with disease. I look forward to your response!

    My apologies for posting this in the comment section, please don’t publish it – I just couldn’t find any other contact info for you.

    theheadstrongme (at) yahoo (dot) com

  35. Blaine Shranka says:

    Hi Lori,

    I came across lwayswright.wordpress.com and wanted to give you a peek at our new piece focusing on celebrities that are living full lives despite their health conditions.

    Here are some of our health superstars’ amazing and inspiring stories, including Halee Newby and her lupus awareness campaign:


    I think your readers would love this interactive slideshow. Share the link on your site — I’d love to give you a Follow Friday Twitter shout out to our 100,000+ followers!

    Best regards,

    Blaine Shranka
    Outreach Director
    Everyday Health
    345 Hudson Street, 16th Floor
    New York, New York 10014


  36. mobile games says:

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