A Magical Night of Disney

Disney rehearsals are well underway and wow what a show it will be. The magical night of Disney is happening at Community of Grace Church in Peoria, AZ on Aug. 3, at 7 PM. It is completely free, and open to all who want to come. But don’t forget to bring your cameras to get those pictures of you, your kids, grandkids and friends with all the special guests who just may make an appearance at this big event.

Everyone loves disney! Just listening to some of the great music from the movies and broadway shows that have come from the hearts and imaginations of the many great musicians and writers can turn a horrible day, week, or month into a better brighter time! We all need a boost of that positive happy feeling that we used to have when we were little. And what better way then listening, singing along and laughing a long with the Princesses, Princes, Villains and side kicks that all make up the Disney world. So I hope to see you all there.





Father’s Day, old dads and new dads

I miss my dad.  I’m just gonna lay it out there.  My life has not been the same since dad passed away.  My dad was a force greater then life.  He was loud, and boisterous, he was funny and very strong in his views on how the world should be run. And he loved Jesus. And, he loved his family.  I never ever doubted my father’s love.  Never questioned if he loved me or my siblings.  I knew he did. I knew he would die for any one of us.  And I knew he adored my mom.  I wanted a life like that. Don’t get me wrong…mom and dad had their issues through out life.  They were far from perfect.  But they did love.  

And now my daughter will be having a baby of her own, my grandson, her dad’s grandson, and her husband will be a daddy.  I have no doubt that he will be an amazing dad who will had down incredible memories and legacies to his son.  In fact I am very proud to say that he will be my grandson’s dad.  I’m so excited to see them become parents.  It is going to be a joy to watch.  

Father’s Day is often underplayed or overlooked which I think is really sad.  In this day and age it is difficult to find a good dad out there, and I think the true amazing dad’s should be celebrated, loved on and totally made to feel honored at least on this one day a year.  

So, here is to all you dads, who work so hard to make ends meet for your families, who help with homework, help putting kids to bed, the dads that cook dinner and read books, the dad’s that play baseball and run with the dogs in the back yard.  All you men who go the extra mile for your families to keep them together and happy.  I applaud all of you.  Happy Father’s Day!!!

Lupus, medication, fear, healing

I haven’t written about lupus, and the fact that I have it, in quite some time.  It’s actually what this amazingly scintilating blog was intended to be about in the first place, but I find that talking about my family, kids, upcoming grand baby etc is much more exciting and uplifting.  Today, however, I thought maybe it was time for a dose of reality.  Lupus stinks first and foremost.  May is Lupus aware ness month and if your facebook page is like mine you have gotten some information about lupus and the affects on one’s body.  There are so many varied and different symptoms and issues that happen from person to person with lupus.  For me it is pain, a lot in my joints, migraines, rashes, sores that show up if there is infection in my body, lots and lots of fatigue, depression, and sometimes even the desire to live like this for the next however many years of my life does not even seem appealing to me.  Not that I would ever take my own life because believe me I in no way want to leave my family, my kids or life.  But, living like this is sometimes not really living.  

The other issue that is really annoying a lot of the time is the lack of understanding of this disease.  Even in the medical field becuase it is so varied in how it affects people doctors don’t always understand, emergency rooms certainly don’t understand, which makes it difficult for family and friends to understand. Now, don’t get me wrong, my family is awesome.  They work their hardest to understand what I go through on a daily basis, but until you have really lived in constant pain, day after day, had to worry about just going outside for fear of gettting sick or breaking out in a rash or both, never know when you will get sick…it’s really hard to know how to handle someone in your family with this illness.

Medications is another one of those dreaded but necessary evils of lupus.  No matter how hard you try to stay off them, or limit them to only a few that are or seem totally needed, they can wreak havoc on your body, system and quality of life.  For most lupies prednisone or steroids of some sort are an necessary evil.  I have tried my hardest to only go on them if I am in desperate need.  Like now, for instance. I have sores all over my face from some sort of infection and I reluctantly went on them to help heal.  But once this dose is done I will not go back on them again until absolutely needed.  Other meds include methotrexate, plaquinel, muscle relaxers, pain meds, blood pressure meds, anti arthritus meds, injections of medication for joint degeneration, gabapentin for nerve pain, anti depressants, and the list goes on.  Now, granted we are not all on these same meds, some are on all, some are on only a few, but whatever a lupie is on can greatly affect their life.  It’s a balancing act and I will admit to have gotten out of that balance and ending up in the hospital because I have not been watching carefully enough what I take and when.  I have gotten so much better with the help of my kids and the help of just realizing it was time to get serious about medication care and control and scheduling.  I want to be clear here however that people with Lupus are NOT drug addicts.  And, a lot of the drug problems happen because doctors just don’t know enough about it, and one doc gives this drug that interacts with that one and it causes a big ole mess.  Not that I haven’t felt like a drug addict at times, or wondered if I am better off not taking anything and just dealing with the pain…been there, tried it and guess what…the pain is unbearable…unlike any pain I have felt in my life.  

There are certainly days when just getting out of bed, just taking a shower causes so much exhaustion, so much fatigue it is better to skip the shower in order to get other things done in the day.  AT the same time there have been times, in the middle of the night that I have sat under the hot water in the shower to try to relieve some of the pain i feel and cannot manage.  

So, why am I writing all this now?  Maybe it’s because I am going to be a new grandma soon.  Maybe it’s because I really feel it’s high time more people know and understand this illness and that it is one that so many people fight and those people are often looked at as hypochondriacs, and emotionally unstable.  It’s real.  It’s not a joke.  So, if you know someone with lupus, give them a break, a helping hand, understanding, love, let them know you are on their side. And, if there are days they want to give up talk them through it.  Because no matter what there are beautiful things in life that deserve to be enjoyed, and lived.  Most of all they need encouragement that on those bad days tomorrow will come and hopefully tomorrow will be better.  

And to all you lupies out there….carry on!!!!!



Nervous thoughts…positive attitudes.

I am going through a time in my life where there are many changes going on all at once.  My daughter has moved in with her sister and now my amazing son in laws mom is going to be moving in with me.  I am actuallly excited to go through this transition, have the two perspective grandmas in one home…it will be fun.  I am also trying to figure out what I want to do dating wise.  I was on a dating site, met a nice guy on there, thought maybe it could be something and then bam out of the blue he just dropped me like a hot potato.  ANd it isn’t like I had fallen in love with him, it just made me really question if I want to go through all this dating nonsense again at this age of life.  Now if God could drop down a nice guy who could love this woman with all her faults and issues, I would go for that.  But the other way is so much work.  

Here’s what I miss from relationship…I miss cuddling at night.  I miss holding hands.  I miss talking at the end of the day. So, maybe all I need is a nice pillow…hmm there’s a thought! LOL  Actually the right attitude, the positive out look is a must once you hit this age and you have no other person.  It’s not easy to find that guy or girl when you are a little bit headed toward the other side of that hill.  And for me, I already know the three perfect guys are already married, and they are related…my brothers.  They don’t make em like those guys any more.  

So, I will continue to try to be postive, try to think happy thoughts and dating…I will be nervous but maybe one day it will all work out!